The Help Who Was No Help

February 2, 2009 at 8:35 am Leave a comment

Sunday, Dan was so happy that he felt strong enough to attend church.  But shortly into the service, he began to have great pain.  He wanted so badly to be there to worship with the congregation so he lay down on the next to last row of chairs.  That did not help, so he went to the car thinking he might find a comfortable position there.  When I went out to check on him, he said, “Please, let’s go home.  I need you to take the bandage off.  The pain is too much.”

As soon as the bandage was removed, the pain stopped. Later, when the new nurse came, she said, “Tell me what to do. They told me that you would show me how to make the bandage.”  She was no help at all.  I had to explain every step, and  show her  again and again how to put the tape on so it would stay.  After 1 1/2 hours, the bandage was complete. We were exhausted.  I can do it alone in 1 1/2 – 2 hours.  Maybe TLC is trying to convince me to go elsewhere.

Lessons I have learned from this – Get the names of several good locally owned Home Health Agencies.  If you are not receiving good service in 7 days, it’s probably not going to happen. Call the Corporate Office, speak to the Supervisor of Nursing Care or even the President of the Corporation. If they refuse to follow Federal Medicare laws, report them to Medicare Hotline.  AND Find another agency who can and will do what you need.  

Did anything good happen today?  Sure — we were blessed to partake of the Lord’s Supper at church before we had to go home; we had homemade sweet bread; because of doing Guided Imagery, Dan’s Ph level is excellent even though he is eating whatever he wants; new friends who own a wonderful B & B in Montara, The Goose and Turret, came to visit for an hour;we had e-mails from beloved friends who are like family to us; Shan Yee has volunteered to give us a ride to the surgical oncologist on Tuesday; our family here are so kind to us even though we’ve been here since Dec. 11; and God still loves us.  

The Scripture God gave me tonight is Isaiah 60:20 – 63:5, beginning with. “...the Lord will be your everlasting light, and your days of sorrow will end…”   — Anne and Dan

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Entry filed under: Cancer's Dark Valley.

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